Showing posts with label cerebral palsy. Show all posts
Showing posts with label cerebral palsy. Show all posts

Monday, November 3, 2014

The girl with steel flowers in her hair: Prayers for whitney Bailey.

Listen up people, please! Serious Prayer request! This is Whitney. She is a friend of mine, a very important friend. I've told you about her before. Talked about essays she's written Any many other cool things. You can also Check out her public speaking page on FB. She Graduated from SFA & currently going to grad school for special Education. This is a very powerful voice for all people & especially those touch by physical disability A big influence on me & my on goals for teaching, at some point. Anyway, A few days ago... Her baclofen pump malfunctions, which is extremely serious . She is in the hospital and slowly improving. I have another friend who this happened to a few years ago. It can be a challenge to solve this problem. Whitney is always up for a challenge. But, if all i can do is tell you about her & ask you to pray with me Holding her & family up to the healing hands of God. Than that's what i'm going to do. Will you please pray with me for Whitney & the Bailey family??


Thank you all so much for all of the prayers & kind words for a very influential friend of mine. Some of you, i don't even know, but your friends of Whitney's & let me say without hesitation, if you're a friend of hers your a friend of mine, i mean that. This is a very powerful young woman. She's cutting a new road & raising the bar for what's possible for people in the "disability community" She's made it her personal mission to destroy the old, naive, ignorant, ideas that society tells someone with physical challenges. I admire that most about Whitney Bailey.

"Whitney sat in her chair for most of the day and has been a lot less spastic. "  She is tired & tight but moving forward from what i cam understand & will go through inpatient rehab When her doctors & family are for sure she's out of the woods & before returning to to grad school. "

Look, i'm doing this for two reasons The first & biggest is, I believe in the power of prayer. it changes things. & the second is, there is too much misguided ignorance in this world. & ever since i've known Whitney Bailey, she's made it her goal through teaching, speaking, writing, & her own actions to defeat those misconceptions & doing it with an overwhelming positive attitude.And one hell of a smile.

Please continue praying. The world needs this girl.

Whitney Bailey public speaking https://www.facebook.com/whitneybaileymotivates

"Still i Rise"  Maya Angelou  Always reminds me of you, Whitney Bailey. You've Got this beat. You will Rise.



Thursday, August 29, 2013

Dinner with John: Needs new wheelchair van




Hello, I'm John Bullard, am 26 years old, and have Cerebral Palsy. I live with my family and love the time we spend together. It has become increasingly difficult for me as of late to participate in very important activities, all of which contribute to my life, without a safe accessible wheelchair van. I have goals and needs I want to work on, like getting my GED, participating in activities with friends, and staying involved in my church, all very special. Also important is the need for transportation for therapy and for medical needs. With prayer, I am trying to raise enough funds for a wheelchair van so that i may travel safely. Life is a gift to be experienced.... and i am asking for your help and donation, please give if you can. it would truly change my
life and my family's life. Go here http://www.gofundme.com/3nihjw Or,  click below to donate. ....Thank you.

 

Friday, August 2, 2013

C.P.: headaches and Days like these.

Add in tension in my neck, ringing in my ears and random coming and going of pain...  this is the "headache"  since spring of  2008 and today hit me at 5:30 am this morning and hasn't let up.  most of the time these days with my head when the other muscle are not... some days  both at once.

Saw the following on a message board discussion on migraines. 


"Used to be that i would get a weird sensation of numbness in the top or sides of my head. For about the last two weeks i have had a full tingly sensation that spreads from around my ear to half way up my scalp and on the upper jaw and cheek. When i used to get the numbness i would self adjust my neck and it would go away. This sensation comes and goes several times a day. It does not seem to be triggered by anything.  Some times i can feel movement and even notice that the movement moves the classes on my face. today i can feel what seems to be my heart beat in the side of my face. My face almost feels like the sensation that you get when you go to get your wisdom teeth out and they stick you with that medicine."






Friday, November 16, 2012

The evaporation of "normal", The Everlasting REALNESS of life.

I want to learn as much as possible in my pursuit of knowledge. While knowing very well, that neither you, nor I, will ever finish that pursuit of knowledge while on this earth. Why, with every new breath, comes a new lessen. I love it when God blesses me by allowing my eyes to open with a new sunrise. I love God. I love my family and friends, which in my life are one and the Same. I want to leave a mark; I want to make a difference. I sit now, But I will stand again. It may not be in this place, or “normal” by its evaporating standers which it falsely claims. But REAL, ever flowing truth.
In my observation, rarely, in being REAL are we ever“normal”nor, in being “normal” are we ever being REAL. For who determines “normal” from REAL But HE, who holds all that is REAL in his hands. I am REAL, YOU ARE REAL, We are different in a few ways but in Many the same. We are REAL. What is “normal “but slow yet never ceasing evaporation of all that is false? And what is REAL, But, all that is strong, able, and, everlasting.

 "He loved us, not because we were lovely to him, but to make us lovely."~  Tim Keller

“Going home Without my sorrow Going home Sometime tomorrow Going home To where it's better Than before Going home Without my burden Going home Behind the curtain Going home Without this costume That I wore”
LEONARD COHEN - GOING HOME. 


Jesus said, "It is finished."

Friday, November 2, 2012

October is National Physical Therapy Month: My feet on the ground.

NOVEMBER is  National Physical Therapy Month.... and I miss all of my P.T.S If you grew up with a disability you understand the impact a P.T. can have on your life. i miss them all everyday of my life.

Diane Funk Milhorn,  You have no Idea how much i miss you... I don't have the words anymore....  Thank you for teaching me lessons that have lasted far beyond my walker and my attitude... Thank you.

When I was a child, I talked like a child, I thought like a child, I reasoned like a child. When I became a man, I put childish ways behind me.
 Corinthians 13:11

If you have someone who pushes you because they love you. to break down your walls of your own  preconceived limitations, hold on to them. because they know what you can do. 

You can only overcome your challenges after you accept them.

when your feet are on the ground everyday you take it for granted. When i could stand i was so focused on upset at the work that i had to do that i missed the reward, I never understood until much later that most times in my life how beautiful it was, My feet on the ground or my fragile step. 

A few years ago i went to run walk and roll with my father there were kids there in Gait Trainers walking slowly but determined  every step of the little girl in front of me was the most beautiful thing I've ever seen. 

Without P.T.S that girl wouldn't be able to feel Gods ground beneath her feet.

   


“Nothing that’s worthwhile is ever easy. Remember that.”
Nicholas Sparks, Message in a Bottle


Pediatric Therapy Associates



  



     

Thursday, July 19, 2012

The only way out is through.

I get by with a little help from my friends. There is a reason I am who I am There is a reason I am what I am, There is a reason for my challenges. There is a reason i once didn’t listen, There is a reason i now hear every word. while I do not know what lies before me, I do know who he has put around me. While i cannot bare weight, I know he has bared every weight….. So if i stand let me stand on the promise that you will pull me through…. the only way out is through.

"If my path be smooth or rugged
If with thorns or roses strewn
Where i go the Father seeith
And He will leave me not alone

If I take the wings of morning
Far within the silent sea
Even there His hand will lead me
Even there my God will be

Though the gloom of night be round me
Though I cannot see my way
yet the Lord will see and guide me
Because unto Him the night is day

If my thoughts are good or evil
Set me think to hide them not
There is one above all seeing
And He beholdth every thought.

And ever more my eyes beholds me
And all my ways to Him are known
And His loving arms enfolds me
He will leave me not alone"

For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.

The only way out is through.

 He made me. He doesn’t make mistakes.   

Monday, May 9, 2011

Dinner with John: Video and written message. PLEASE READ.

John Bullard is a 23 year old young man, great in spirit, and has dealt with Cerebral Palsy all his life. John’s condition has historically been treated with coverage from Medicaid. Over the last few months, John has faced many personal challenges with this treatment. Medicaid informed John he was being forced to move to a HMO plan primarily triggered by his age. With this, the medical facility treating John informed him they would not be able to provide treatment. This is one of the largest and most respected medical facilities in the United States. Efforts to have this corrected have been futile, leaving John with no medical treatment.
John’s personal friends, moved by his situation, created this video. John and his friends are frustrated with what they see happening today. Special needs individuals are been forced into compromised or terminated treatment. John is not the only individual suffering with this; just in his small circle he knows similar stories plaguing them as well. This group of young citizens are very passionate about our politics driving the agenda, leaving the most disadvantaged behind.
Their request to us is simple, first and foremost for us to pray for change of this course we have created. Secondly, for us to distribute their message by forwarding their video in each of our circles, hoping that through doing so, we will get the message into the hands of individuals that may be able to help create change.

“I was born with Cerebral Palsy and someday,  I will die with Cerebral Palsy.
What matters?  Age and the budget? Or the human condition, and the quality of our lives?”


Please click the link to watch


Dinner with John: A video by Joshua Read


“Where you invest your love, you invest your life.”

Thursday, March 31, 2011

My First Post and the voice i needed to hear...

 I believe and KNOW with all my heart that GOD leads us to the people who he knows we need to hear at the time we need to hear them most! Go to this website when you get a chance... This guy has changed my life in a matter of hours. And I haven't even read his book yet! God wanted me to know who Brandon Ryan is! Mr. Ryan, Author of the book ”The Emotional Struggle" is someone God led me to this morning and I am so very thankful for that. I ask that you go to Mr. Ryan's website and let god use him to touch your life like he did mine today.
http://brandonthewriter.com/

BUY THE BOOK HERE

Thanks for reading.